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To make a diagnosis of epilepsy,
it is necessary to establish a tendency to recurrent spontaneous
epileptic seizures. Many people have a single isolated epileptic
seizure at some point in their lives, but if a person has more than
one epileptic seizure, then a diagnosis of epilepsy may well be
considered. |
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Epileptic seizures are due
to an intermittent and temporary disturbance in the brain which
produces some or all of the following symptoms — disturbance of
consciousness or awareness, alterations of bodily movement, sensation
or posture. |
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More often than not the
person concerned will have no recollection of what has actually
happened. For this reason it is very common for someone else, (such
as a parent, or spouse) to report the seizure to the doctor. Seeing
a person having an epileptic seizure for the first time is a frightening
experience. Nevertheless, it is very important to remember and relate
accurately all the events surrounding the seizure and the details
of the seizure itself. The doctor is heavily dependent on an accurate
eye-witness account of the seizure, which may be the only information
upon which the diagnosis rests. |
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HE FELL TO THE GROUND AND
BEGAN TO SHAKE AND TWITCH UNCONTROLLABLY- SEEMED TO HAVE TROUBLE
BREATHING AND BECAME PALE AND CLAMMY. |
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AFTER
ABOUT 2 MINUTES THE SHAKING CEASED AND HE CAME ROUND, BUT WAS A
BIT CONFUSED. |
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BEFORE THE SEIZURE HE WAS
ACTING QUITE NORMALLY - BUT SUDDENLY HE CRIED OUT AND THE SEIZURE
BEGAN. |
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The doctor will also need
answers to certain questions which he may ask of the person who
experienced the attack and the person who was with them at that
time. Some of the questions, only a parent may be able to answer.
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Was there any warning
immediately before the attack happened? |
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Was the person who
experienced the attack tired, hungry, thirsty, hot or very
emotional before the attack occurred? |
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Did they feel unwell
before the events i.e. sick, dizzy, faint or breathless. Were
there any chest pain or palpitations? What was the person
doing at the time of the attack? |
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What actually happened
before, during and after the attack and how long did the attack
last? |
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What is the first memory
after the attack and was there any muscle weakness afterwards? |
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Were there any birth
complications when they were born? Have they ever had any
head injuries? Did they ever have convulsions with a high
temperature as a child? |
| To help
confirm the diagnosis, the doctor may arrange for the person
to have a number of tests. These may also help to determine
whether there is any identifiable cause of the epilepsy. |
| The tests
alone do not make a diagnosis of epilepsy; this remains a
clinical decision based on what has happened to the person.
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| Diagnostic Tests |
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Blood Tests |
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These check the general health
of the person and help to exclude a metabolic cause for the attacks
/ sugar test. |
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EEG |
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(Electroencephalogram) |
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| This test records
the brain’s activity by picking up the tiny electrical signals
given off by communicating nerve cells. Electrodes are placed
on the scalp and the signals picked up are then amplified
and recorded onto paper. It is a painless procedure which
usually lasts about 20-30 minutes. |
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| At some point during
the test, the person may be asked to breathe deeply, open
and close his/her eyes and he/she may also be asked to look
at a flashing light for a few seconds to see if the record
changes in response to certain frequencies. If an individual
has photosensitive epilepsy i.e. their seizures are triggered
by flashing or flickering lights, on the EEG will reveal this.
(The CIEN fact sheet “Photosensitive Epilepsy” gives more
information about this). It should be remembered that the
EEG can only give information about the electrical activity
of the brain during the period of recording. Only if patterns
characteristic of epilepsy are seen during the routine recording,
is the EEG of value in the diagnosis of epilepsy. A negative
EEG does not exclude a diagnosis of epilepsy. |
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| NEUROPHYSIOLOGY |
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EEG Ambulatory Monitoring |
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Ambulatory Monitoring allows
the activity of the neurons to be recorded for several hours, days
or sometimes even weeks. Electrodes are again attached to the scalp
and are hidden under the hair. The wires are then connected to a
small cassette tape recorder which is worn on a belt around the
waist. The person can then continue with his/her day to day activities.
There is a button on the recorder which can be pressed either by
the persons themselves if they know they are going to have a seizure
or by an observer if the seizure occurs. |
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Video Telemetry |
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This test involves both EEG
and video recordings being made simultaneously and is available
at some hospitals and specialist centres. The purpose of the test
is to try and record a seizure on video as well as the EEG trace
on paper. The electrodes are attached to the scalp as before and
the person is usually able to move freely around the room within
view of the video camera. |
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Brain Scans |
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| If the doctor is satisfied
that the events were epileptic seizures the person may be
referred to have a brain scan.These are carried out to see
if there is any structural cause for the epilepsy. |
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| Computerised Tomography
(CT or CAT) These scans use computerised X-ray techniques
and they may reveal any very obvious structural abnormality
or damage which may be present. |
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Magnetic Resonance Imaging
(MRI) |
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MRI uses harmless magnetic
fields and radio waves to form an image of the structure of the
brain. MRI can reveal far smaller structural abnormalities than
CT and so is preferred by many doctors. Fact sheet on MRI available
at CIEN. |
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Drug Treatment |
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Once a diagnosis of epilepsy
has been made the doctor will usually suggest starting treatment
in an effort to control the seizures. The most commonly Recommended
form of treatment is with anti-epileptic medication and more information
about this is available in “Drug Treatment of Epilepsy”. However,
some people have very infrequent seizures, sometimes separated by
a number of years and in these cases they may not want to start
treatment, especially if they do not wish to drive. The doctor and
the person themselves should decide together whether or not to start
treatment. The diagnosis of epilepsy may have many non-medical implications
affecting education, work, leisure, life insurance etc. All these
should be considered when discussing possible treatment. If the
person themselves are not involved with the decision-making, treatment
may well not be taken reliably, leading to further problems. It
is important to remember that up to 80% of people with epilepsy
achieve total control of their seizures with the right anti-epileptic
drug. |
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Surgery |
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Neuro-surgical treatment
may be considered if the drug treatment has been shown to be ineffective
and if one specific part of the brain can be identified as being
the area from which the seizures arise. There is more information
on this form of treatment in the CIEN fact sheet “Facts about Epilepsy
Surgery”. |
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Reactions to a Diagnosis
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People will react to a diagnosis
of epilepsy in different ways. Many people are very shocked to hear
that they have epilepsy. Others may be relieved to finally know
what has been causing the “episodes” and to know that treatment
can be started. Anger is another very commonly felt emotion as epilepsy
can have such a major impact on someone’s lifestyle. Most people
will probably experience a range of different emotions and it is
only natural that they should do so. |
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People often feel that they
want to talk to others about their diagnosis and the CIEN co-ordinates
a Community Network of local groups offering support and information
to people with epilepsy, their families and carers. |
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Some people will feel the
need to have formal counseling whereby the counselor helps the person
to recognise, verbalise and work through any negative emotions and
concepts they may have so that they can reach a stage of acceptance.
The Psychologist and Counselor at CIEN may be contacted. |